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Sunday, August 7, 2011

Siblings of a child with Autism

Oh boy what can I say here?  My children are AMAZING with Johnny.  They help me in so many ways.  Whether I am having trouble getting Johnny under control, or I know he won't calm down until I leave the room, or if I've simply had enough, they are right there to help.   Sometimes they show up out of nowhere, kind of like the butler in Mr. Deeds would just seem to materialize and be in the room all of a sudden.   I am so thankful for them.  I tried a new strategy with Johnny today and couldn't wait to tell the kids about it so we can all be on the same page with him.  They always do their best with him and it's usually exactly what I would do myself.  They babysit him while I work and if they didn't make it a joint effort and try their very best it would be disastrous and I wouldn't be able to work.  (I only work summers for now.   For the first few weeks of  summer Johnny is home all day every day but for all of July he has been either in camp or summer school, and that leaves only a few weeks of him being home all day before school starts back up again.  I work 4 days a week 10-3 at a produce stand that is nearby.  The owner is very understanding and always willing to rearrange the work schedule when I have an appointment.  I'm also very thankful for that and for Amber, another employee who is always willing to switch to accommodate me).  My kids are always concerned about what the "right" thing to do is.   If they ever aren't sure they call me if I'm not home or they come get me if I'm not right there.  What more can I ask for there?


My 11-year-old daughter, Riley, wrote a book when she was 9 titled "Life With An Autistic Brother."  In the first few days after it was printed, she made enough money from sales to buy herself a new bike.  Her book really opens your eyes to what siblings deal with.  Her positive attitude speaks volumes about her.  She is patient and understanding and is considering a career working with special needs children when she grows up.  She does an excellent job.  I know she will be great at it.  All of my children are awesome.  I'm a lucky mom.  :)


It's so important to let your children know how much you appreciate them.  Mine have made plenty of sacrifices as I'm sure many siblings like them have.  While they still find things to complain about, I can't think of one time when any of them have protested about things they miss out on because of their little brother's disability.  They are a blessing to me and to Johnny as well.


5 comments:

  1. Perfection. I often think of how wonderful Johnny's siblings are with him. They never cease to amaze me. They are so loving and patient, and have learned that from watching you.
    I am enjoying your blog so much.....I find myself checking several times a day to see if you've made a new entry. It's fabulous, just like its author.

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  2. I'd love a copy of Riley's book. I agree with Anita about enjoying your blog. I also check for new entries often. Great picture of the kids above. I keep forgetting you have another son that's not pitured.

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  3. Wow thank you guys. You're so sweet. I come upon like 5 situations a day where I say "Oh I'm gonna have to put that in my blog." I have to space them out though. I like each one to be basically about one subject although I tend to ramble just a little. And I have to start on the recipes I promised! Something funny I wanted to put in this one but didn't....I noticed today Johnny and I were covered with brown dots...arms, legs, shirts, everything. Then I noticed when he's drawing his BROWN telephone poles with his new BROWN marker, he stands up and looks at it and flaps. We are being showered with brown ink from the marker. What am I supposed to do about that? Tell him to stop flapping? Luckily it's washable and comes off with just water.
    My oldest son, Daniel hasn't made it up here to visit yet but I'd sure love it if he did! And Anita took that picture! She's a great photographer.
    Thanks for the nice comments. :)

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  4. Knowing your family...all of them...I can see why God gave Johnny to you and no one else. ♥

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  5. Why? Because of all that bad stuff I did as a teenager? Nah...thanks Trish. That's such a nice thing to say. I do have the most amazing family a person could ever ask for. Each and every one of them plays an important part in his life too. I'm so happy to be here in MD with them and not in FL in the situation I was in. I thank God for them daily.

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